Cason had done fairly well for about the past year. He had been on an apnea/bradicardia monitor, special formula for reflux, physical therapy, occupational therapy, early intervention, and speech therapy. Progress was slow, we still did not have a dx, and Cason was almost 2 years old & only 17 pounds, and still very very floppy.

In march 2005 Cason caught the rsv virus. After fighting that in the hospital for 2 weeks he developed pneumonia. Cason had to be sent to pensacola via life flight. By the time Cason got to Pensacola he had to be put on life support.

Since we had suspected that Cason has some form of neuromuscular disease we had to plan for his future. The critical care physicians recommended doing a trachaeostomy. In April, cason had another muscle biopsy, skin biopsy, tracheaostomy, g-tube (feeding tube), and correction of an undescended testes. My trooper recovered quickly and stayed in the hospital for a total of about 2 months. We went home as new parents. Parents of a special needs child with a lot of equipment, needs, and care. But, thanks to God’s blessing he was still with us.

Unfortunately, Cason has had to be rushed back to Sacred Heart several times since then with respiratory distress. We have been in and out of the hospital several times since March.

The muscle biopsy finally gave us a dx of Myotubular Myopathy. This is an uncurable, terminal disease. Cason will never walk and will be dependant on us for total care for the rest of his life. Most information that we have read says that Cason’s prognosis is not good, but my faith in God keeps me going. With His help, miracles can happen and through the power of prayer, I believe that my baby boy can and will survive. Please help me to pray for Cason’s Miracle.